Who We Are
The Tiana Leigh Lung Foundation was established in 2008, inspired by the extraordinary journey of Tiana Leigh. Born with an extremely rare and life-threatening lung disease, Tiana has overcome incredible obstacles, including surviving cancer and managing a serious heart condition. Today, she can survive without supplemental oxygen for only a few seconds—yet her spirit and determination continue to inspire thousands.
The Foundation is officially recognized as a Public Benefit Organization (PBO) under Section 18A(1)(a) of the Act, making all donations tax-deductible.
Our Vision
- To unite efforts in improving the health and wellbeing of those living with rare diseases, creating pathways to better lives
- To build national awareness about the unique challenges faced by the rare disease community, including the significant financial burdens and the need for an inclusive, understanding society
- To help create a world where people with rare diseases have reliable access to care that extends and improves their lives
- To serve as a central hub connecting patients, organizations, healthcare providers, and advocates within the rare disease community, driving progress for all affected
"Dare to Thrive... not just survive."
"Alone we are RARE. Together we are STRONG."
Join Our Cause
We invite supporters from around the world to share in this journey and help make a difference. Your contribution—whether a one-time donation or monthly commitment—directly supports programs that improve lives within the rare disease community.